Monday, 29 August 2011

A Diagnosis

We moved to Cemmaes. A friend of a friend had a small house to rent, it was a shell of a house,Bob had been going their for about a fortnight getting it ready for us to move in.
It was the opposite to what we had been in and no garden. We also put our names down on the council list. But it was in a nice village, with a shop, a pub and a post office and the village had quite a few other children in it so our kids were really happy.
I was given a wheelchair, I think I stared at it for a month and kicked and hissed at it when I passed it. I had to accept it before I could use it, and that took some doing, yes logically I knew it was better for me and the family for me to use the wheechair, especially if we were going on a family day out to a theme park or shopping for the day, but i hated the idea of it, many times we would attempt to have a day out and because i was so stubborn I wouldn't go in the chair, we would end up coming home because i couldn't walk. I think I probably spoiled many days out because of not wanting to go in the chair. In the end I had no choice, it was chair or I couldn't go out.
Being in a wheelchair is because your legs don't work properly, not your brain! The amount of times Bob was asked" how is she doing" when I was sat in in front of them, I can't remember!
I was still going to my GP complaining of this and that,I was given anti-depressants, i kept telling the doctors I wasn't depressed, I just wanted to know what the bloody hell was wrong with me. I think they dreaded me going into see them. One of them retired and a locum GP, Dr Cambell was their when i next visited. He seemed quite interested in what was wrong, didn't think I was mad or that i was making it all up. He took some blood for even more tests. After a couple of weeks I got a phone call from the surgery to go for my blood results.
My results showed Epstein Barr Virus, this meant nothing to me at the time, but I was happier that something had showed up. I was then put on a waiting list to see a Proffeser Lewis.
After a long wait an appointment came, it was 1994 in Bronglais Hospital in Aberystwyth, we saw a Proffeser Lewis, a lovely man. He had lots of papers in front of him, he asked me loads of questions he examined my arms, legs, he seemed to understand what I was telling him, after about an hour he informed me that I had 19 of the 21 symptoms he had listed for MYALGIC ENCEPHALOMYELITIS otherwise known as M.E.

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