Woke on Friday morning and my body had gone so stiff I wondered if i had taken a short course in death. I don't seem to move a lot when I'm asleep, I wake virtually in the same position that I was in when I fell asleep. It took a while to actually get out of bed, I was in a great deal of pain. The first thing I did was to take pills, put kettle on and have a cigarette. I have often thought about smoking cannabis, I'm told that it may help with the pain, so far I haven't, but I may in the future.
I tried to do some stretching but it was too painful, I did manage to roll my shoulders a couple of times but that was about all.
I got to work just before 9.00am and went over to Michelle, my foot lady, to re-arrange this weeks appointment and have a cuppa and a chat.
Brenda and Cath wondered where I was when they arrived at work, because I'm always in the office before anyone else, the chat with Michelle had gone on longer than expected, and just as I got into our office my mobile was ringing. My friends are great, if I'm not where I should be at a certain time they ring to check I'm okay. I think the falling down stairs and the fact that I'm living on my own now has made me and others realise how vulnerable I am.
The Advice Centre was very busy and I had lots too do, so by the time we closed I was ready to go back to bed.I was asleep by 3.15pm
I woke about 6.00pm feeling really shaky, almost zombefied after a drink I felt able to heat some soup. I rang Katie as I hadn't had a chat with her for a week or so. I was back in bed by 8.00pm, I had weird dreams and woke in a panic about 2.00am, I really needed a shower, but I haven't got one so a wash was the best I could do. I managed to calm myself down after 3 cups of tea and 3 cigarette's. The dreams are awful, they are so vivid when I wake from them my body and brain feel like the dreams have been real.
I went back to bed about 4.00am then woke at 10.30am and I felt able to get up! Most Saturdays I don't see until at least mid afternoon. I even went for a walk round town had a mooch in a couple of the shops. I treated myself to a couple of chocolate bars and went back to the flat. My thoughts were at Spring Lea, where we all used to go fishing, Bob, a couple of his brothers and their wives and also Jonathan were their for the weekend. I have some great memories and part of me wished I was their with them. My brain was so bloody active that I didn't sleep at all Saturday night, I played some scrabble and then watched the rugby, Samoa against Figi was great, before the kick off they did their war dance thing, was brilliant, I put a load of washing in the machine and went to bed about 9.30am Sunday morning.
The next thing i knew was the door bell ringing and mobile ringing both together, believe me that's hard to cope with when you wake up like I do.
Jonathan decided to pop in on his way home from fishing, for him too it had brought back memories. He'd had a good time, caught some carp, but gosh he did smell of fish and was filthy, don't think Sarah would of hugged him as soon as she saw him!
Bobby rang and texted he is on his way home as I type this, leaving Glasgow at 11.00pm on a bus, travelling all through the night and he get to Birmingham at 6.30am, then a train to Machynlleth. He is so excited, he read this blog yesterday and he read the part where I said that I needed sleep before and after I see him. He apologised to me for being so hyper, but he can't help it it's the way he is.
We are going to the Taj Mahal tomorrow, I have just realised that I should of booked it, but I have forgotten! Oh well, will try to remember in the morning.
The next part of my blog is going to be about mine and Cath's holiday last year, we went to Corfu for a week.
Take care everybody xxx.
Denise, I have just read your blog and to some extent it's similiar to my life with m.e. I also work and live alone and not a day goes by where I don't dread waking up and wondering If I am going to make it through the day. I've been pretty poorly and sat here last night alone wondering what to do.. should I go to a&e, ring the Dr or what. I desperatley wanted someone else to take the strain.. I eventually made a call and I am now back from hospital. Thankyou for sharing your story via your blog x
ReplyDelete