Thursday, 3 November 2011

M.E not so good, but some things to look forward too

Monday I woke feeling really stiff and it was difficult to get out of bed, even more difficult and stressful was getting washed and dressed. My arms and fingers hurt like hell if I tried to use them. I lost my temper with myself because I couldn't do the buttons up on the blouse I wanted to wear and had to wear something else.
I was so glad that I had done my tablets on Saturday, I put them all in the compartments, morning, lunchtime, afternoon, dinnertime, evening and bedtime for each day of the week so all I had to do was slide the top off Monday - Morning, and swallow them. I put just enough water in a jug for a cup of tea and then poured it into the kettle. Lifting a mug of tea still hurt but not quite as bad as the previous day.

Luckily the painkillers and muscle relaxant's started to kick in before I went to work. It was a no make up day, a no hair done day as I wasn't able to do it. I hate it when I can't look after myself properly, it sends me on a downward spiral mentally so then I get depressed about being ill and end up feeling sorry for myself and get myself in a right state, crying one minute and ranting and raving the next. It takes a while for me to come back up after feeling like that, so it was good that later in the day I got a text from a friend, who is going off on her travels again, to ask if I would like to go for a meal before she goes.
Work was hard for me on Monday as I could hardly type but I managed to do the work I had to do.
After work I got back to the flat  had more tablets and painkillers, a cup of tea, a couple of cigarettes and got back in bed. The pain in my fingers nearly drove me mad, thankfully tramadol and baclofen sent me to sleep for a couple of hours. When I woke my fingers felt slightly better so I got up and made a sandwich, a cup of tea and watched TV for a while, phoned my daughter Katie for a chat and to see how the packing was going, as they are moving to a bigger house at the weekend, not far from where they already live.After our chat I was so tired that I went to bed again at 7.00pm and I slept till 2.00am. I knew it was late for me to have my bedtime tablets but I took them anyway and within 30 minutes I was back in bed and fast asleep.
Tuesday I woke about 10.30am dripping with sweat, feeling very groggy, as you do if you've been partying the night before and drinking lots of alcohol, except in my case I hadn't had the fun of doing any of that! Its what I call Brain Fog!
Even after my sugar puffs, 2 cups of tea and 2 cigarettes I still felt the same so their was only one place I was heading and that was bed. I slept solidly till 5.00pm! My day off had gone by without me really noticing it! 
A friend came round about 7.00pm took one look at me and her comment was " you look really healthy....NOT". She made us a coffee and we chatted for about an hour and informed me she had seen one of our friends children smoking "Weed". The child is 15 and rebelling as we all did. If the "weed" was like the cannabis that I  and many of us smoked 30 years ago I wouldn't have been too worried, but now a days its a lot different, other "stuff" is mixed with it and it can lead to other problems. So I thought about it and decided I would tell our friend, so I left her a private message on facebook asking her to "pop round" when she had time as I needed to speak to her. 
In my job I see some client's who are drug or alcohol  dependant sometimes they are dependant on both , some have been dependant for years and will continue to be so for the rest of their lives, others try to come off it with the help of methadone or some go to rehab or some  go "cold turkey". I enjoy my job as I meet all sorts of people, its interesting, every day is different and I like a challenge, which sometimes it is.
My friend left about 9.00pm  and I knew  needed to have  a bath as I had work the next morning, so I put some epsom salts and radox in the bath and filled up the bath. I always have difficulty getting in and out and usually end up hurting myself, this time was no different, the soak in the bath did me good and I was clean but getting out I had one foot on my step and missed it with the other foot so I half fell out of it!.
After being wrapped in a towel  for 20minutes  I'd had my bedtime tablets so I went to bed. not my bed but the spare bed, my bed needed stripping but I hadn't the energy to do it.

Wednesday I woke before my alarm went off, which was good,  so I stripped my bed and left the window wide open and sprayed lavender round the room and on the mattress before I had even had my breakfast, as I knew I would need to have a rest after doing it.
I had my sugar puffs and two cups of tea and a couple of cigarettes, watched sky news for a few minutes then got my lunch together to take to work. I have been trying not to eat bread so much, so I got some crackled black pepper ryvita's and humus and cherry tomatoes and 3 satsumas and put them into my lunch box. Then I went for a wash and  brushed my teeth. I swapped to an electric tooth brush about 8 years ago and I was glad of it on Wednesday morning as my arm muscles were still quite painful.
We didn't actually "Open " for client's on Wednesday as I was the only member of staff in. I quite enjoyed being on my own, I got quite a lot of work done, dealt with the phone calls etc had my lunch and I left a bit early. I went a walk round the market mooching at the stalls, I heard this horn from a van tooting and vaguely saw a person waving but really took no notice, then the van pulled up beside me and I realised it was my son Jonathan, he was in his bosses van on his way to an elderly lady who couldn't start her car, we had a chat for a couple of minutes then he went off and I carried on mooching round the market stalls. I had walked down one side of the street and then I saw Bob in Jon's car and he stopped so could get in and went back to my flat and had a coffee and chatted. Jon came later after work, stopped for a while then took Bob home and I fell asleep on the sofa. I hardly ever do that, usually if I feel I'm falling asleep  will go and get into bed. Anyway I woke and had a cup of tea and then watched Frozen Planet on TV for a while, I don't watch the gory bits but I do love David Attenborough's programmes, I record most programmes I like because I can't just sit and watch for an hour, I watch in bits and pieces. Then I went on the computer for a while and looked at one of the M.E. groups on facebook, Raggy Dolls, its just women and we all have M.E or similar illnesses. It had been suggested that we do a calender for the 2013, we had lots of fun and have decided to do a burlesque them, a bit naughty, a bit sexy, but not over the top and I have volunteered to be one of the models!









 

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