Monday, 14 November 2011

Not the good weekend I had wanted for M.E

Saturday, my body or brain did not want to get up, I think my body gets used to my routine and know it can do nothing when I'm not at work! Though after a while my brain did kick in because I had promised Bobby I would go to Aberystwyth to collect his Christmas present to his dad. I tried to fool my body and let it have a couple more hours rest. 
I got up at 9.00am instead of 7.00am which I do on a work day. It was a lovely sunny bright day and I was looking forward to going to Aberystwyth, had it all planned what I was going to do and which shops I was going in.
I got ready and got on the 10.30am bus which would get me into Aber at 11.30am. Once on the bus its not long before I'm falling asleep! Whenever I travel in a car or bus I'm asleep within 5 minutes! However each time the bus stops my eyes sort of open and I realise I'm not their yet so off I go again!
Once I get their I need to have a strong coffee to try and wake me up. I decide to sit outside a cafe so I can have a couple of cigerettes while I people watch for half and hour or so.
I could have fallen asleep sat their, but I made myself get up and go and get the present and blank dvds that Bob wanted.
Two shops and I was done in, I knew I had to get back to the bus stop, my legs didn't want to work so it was a slow process, by the time I had got their I was dripping in sweat, hair was stuck to my head and face, luckily their was a seat left so at least I could sit down.
People looked and stared, but not one of them asked if I was okay. I could feel myself getting upset and was biting the side of my mouth so I wouldn't cry and be more of an exhabition show.
The bus came and I got on, on the way back I was in to much pain with my legs and back to sleep. 
Once I got to Machynlleth I sat on a bench having a cigerette, people watching while I waited for friends, Nicky and Charm, didn't have to wait too long, Nicky looked great she had been to have her hair done and had some lovely colours put in. We had a few laughs, Charm wanted to go to the conker night, that night, cos last year she came second and to prove it Nicky stated that also had bruises down her arm from where the conker hit her, so good luck to Charm.
We chatted for about an hour and it cheered me up, but by then I was so tired. I got back to the flat about 2.30pm and went and got into bed.
I woke a couple of hours later took my quilt and pillow in the lounge and lay on the sofa waiting for the football to start.
I had one eye open the other closed and was listening to the footbal, I did wake up a bit more when Englands Frank Lampard scored. I needed a cup of tea and a cigerette after that shock. I had a bowl of Alpen cereal, that was the first thing I had eaten that day.
Once the game ended I had  another cigerette and tablets and painkillers and went to be. I woke about 3.am dripping and shaking, so made a cup of tea and a slice of toast with peanut butter spread all over it, was quite nice!. I got in the other side of the bed as my side was soaked.I slept till 10.30am, I got out of bed, had some Alpen, cup of tea and a couple of ciggerettes, I felt like I'd been to an allnight party and then crawled, literally back into bed. I stayed their till 3.30pm. I had to get myself up whether I wanted to or not because I was desperate for a bath. I stripped my bed as the bath was filling up and opened the bedroom window wide to let in some fresh air!.
Sunday was turning into a not so good day for me, no energy, smelly and I need to get myself in the bath and out again. I managed sort of but hurt my back in the process. I did feel better and smelled a lot nicer, but it had taken so much energy from me. I just found a huge towel, wrapped it round me and watched TV for a few minutes. I knew I had to make my bed up so I started slowly, first doing all 4 pillow cases and the bottom sheet, that was enough for while. I needed to rest before I got the duvet cover on the duvet. Its things like this that get me mad, I used to do all this so easily and now I have to rest and do it in stages. I did the duvet but by the time it was done I was dripping with sweat, my stuck to my face and the muscles in my arms hurting like hell!
I had a drink took my night time tablets and painkillers had a cigerette and went to bed. It was one of those nights where if I had stayed awake I would have got mad at myself.
Luckily for me sleep won, and I woke just before the alarm on Monday morning.

No comments:

Post a Comment